04-27-2006, 02:56 PM
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#1 (permalink)
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| Testical Development Well guys, I have a question on a more personal note. My son who is 14 went for an annual check up Tuesday and the Doctor said his testical size was smaller than it should be at his age. The penis size is average or even above average, but the testical's are not growing at the correct pace. He wanted to talk to a Doctor friend of his and get back with us. Well, the next day he contacts us and says I want to get your son to a Endocrinologist and am going to try to set this up for Friday. The nurse calls and says this is not going to be possible, we are booked completely through June. But, the doctor calls back and says, no, I have it set up now. You need to be there at 2:00 Friday. This concerns me. It seems they are rushing him in for some reason. I know Uber and Dogg probably have some useful information about this. Any info is appreciated.
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04-27-2006, 03:12 PM
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| I can't help as I'm not good with that stuff but keep us posted as to what the doc says.
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04-27-2006, 03:15 PM
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| Endocrinology isn't normally part of emergency medicine. I think that the doctor just wants it done sooner rather than later. It doesn't make sense that the nurse says they are booked through June. Honestly, that sounds fucking rediculous. Maybe your doctor knows that this place doesn't operate with the most competent people and is trying to save you some trouble by muscling an appointment in. I wouldn't worry though.
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04-27-2006, 03:20 PM
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| Thanks Uber! The thing that really concerns me is there hasn't been a dificiency in testical development in my family nor hers. And the doctor Tuesday said, there must be a hormone deficiency which is triggered to be produced by the brain, some vien in the brain, (can't remember the name). And his spine has the shape of an "S". Now keep in mind, he is 14 but he is 6'3" tall. Hell, I don't see how his body can produce enough of anything to keep up with his growth! Not sure about the spine either. The doctor didn't seem as concerned about the spine as he was the testical's.
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04-27-2006, 03:25 PM
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#5 (permalink)
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| Holy shit, he's only 14 and 6'3''????? Damn! You've got a big kid there want8! Shit, he's taller than me and I'm 35!!! LOL
He'll be fine want8. Isn't an "S" shape to the spine a sign of scoliosis??
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04-27-2006, 03:28 PM
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| Yeah, he is a big boy! The funny thing is, i'm 5'9" and mom is 5'4"! I told her, I didn't remember having a milk man or anything! LOL And yes, the doctor did mention scoliosis, but wasn't sure if this was what the diagnosis would be. Guess we will find out tomorrow.
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04-27-2006, 03:29 PM
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#7 (permalink)
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| Well, keep us posted!
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04-27-2006, 06:32 PM
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#8 (permalink)
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| I have to admit that I would be curious if your son possibly had a chromosomal disorder. These aren't always inherited and frequently occur because of nondisjunction during cell division. The fact that he's only 14 and 6'3" is surprising in addition to the fact that he may have a problem with his spine. Boys with an extra Y chromosome are frequently taller than most boys their age and sometimes have skeletal abnormalities. The only way to diagnose it would be to get him a karyotype to count his chromosomes. http://en.wikipedia.org/wiki/XYY_syndrome
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04-27-2006, 11:50 PM
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| i was at least 6'0'' when i was 14, probably taller, i dont remember..it's not a bad thing..
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04-28-2006, 12:46 AM
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#10 (permalink)
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Originally Posted by slimthug i was at least 6'0'' when i was 14, probably taller, i dont remember..it's not a bad thing.. | Yeah, but the point is that it's rare for a 14-year-old to be that tall. Always ask questions.
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04-28-2006, 01:57 AM
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| Want8,
When I was around that age I was taken to an endocrinologist and was told that my testicle size was below that of someone for my age (I think i was 13 at the time). I don't think I was over 6 feet tall at that time, but I'm currently 6'3. I don't remember ever going for a second visit, though, so I'm guessing it was just a fluke of sorts and my body kicked into gear soon after.
I'd imagine that any sense of urgency is because development during puberty is vital to a male or female's health (especially sexual health) after puberty. Underdeveloped testicle size may lead to lowered (or no) sperm count, and therefore the issue would become one of adjusting your son's hormonal level so that he develops in a manner that would avoid sterility later in life.
I'm not an expert though, so please don't quote me on this. My knowledge of sexual development is somewhat limited. Good luck, and keep us posted, please. |
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04-28-2006, 01:05 PM
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| Thanks guys. And Nuclear, actually this is what the doctor told us. He said the problem needed to be addressed now while he is going through puberty to avoid possible sterility later on which is my main concern. Thanks guys for the responses.
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05-04-2006, 01:46 PM
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| Well, Uber you were almost on the money! A woman has 2 X chromosomes, a guy has 1 X and 1 Y. In his case, he has 2 X's and 1 Y. This is what is known as Klinefelter Syndrome. They took blood test's which we are still awaiting the results so I guess we will find out for sure. But the doctor is 99.9% certain this is what he has. The sad part about this is, he will never be able to produce his own children, according to the doctor. Because he has this condition, his body is not producing enough Testosterone, therefore he will more than likely have to take treatments. We are still waiting to find out the diagnosis on the spine abnormality. I will keep you all posted.
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05-06-2006, 12:14 AM
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| Want8,
I'm sorry to hear this news. My best wishes go to you and your son. |
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05-06-2006, 01:23 AM
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Originally Posted by want8 Well, Uber you were almost on the money! A woman has 2 X chromosomes, a guy has 1 X and 1 Y. In his case, he has 2 X's and 1 Y. This is what is known as Klinefelter Syndrome. They took blood test's which we are still awaiting the results so I guess we will find out for sure. But the doctor is 99.9% certain this is what he has. The sad part about this is, he will never be able to produce his own children, according to the doctor. Because he has this condition, his body is not producing enough Testosterone, therefore he will more than likely have to take treatments. We are still waiting to find out the diagnosis on the spine abnormality. I will keep you all posted. | I'm sorry to hear that want8. Have they done the karyotype yet? If not, how can the doctor be so sure? The symptoms aren't really obvious.
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05-08-2006, 01:00 PM
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| Thanks for the comments guys. Uber, they did some blood work when we were there and we are waiting for the results. Supposed to go back on the 23rd to find out for sure. I will keep you posted.
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07-21-2006, 01:58 PM
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| Just an update! The blood work did verify he has Klinefelter Syndrome. He in every way is normal, but want be able to produce children. His penis is actually larger than normal for his age, but his testicles are small and somewhat hard, almost like a big marble. We have hadto start giving him Testosterone treatments through injection, once every 10 days, until his levels are normal. After we get the levels in tact, the doctor says he may be able to wear a patch or do some other form of treatment as opposed to shots, which he hates! Anyway, thanks for all the great comments and support and I will keep you all posted.
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07-21-2006, 08:27 PM
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| so he wont ever be able to have children? or will the treatment definitly work? |
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07-21-2006, 11:16 PM
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| Godspeed Want8. I have just a couple of questions if you don't mind. How is your son taking all of this? Also, does he have alopecia or other hair ailment? Wishing you all my best. |
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07-25-2006, 12:45 PM
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Originally Posted by wilfred123456 so he wont ever be able to have children? or will the treatment definitly work? | He won't be able to have children. The treatments are for his testosterone levels to become balanced for growth purposes and bodily functions.
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07-25-2006, 12:48 PM
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Originally Posted by Betterman Godspeed Want8. I have just a couple of questions if you don't mind. How is your son taking all of this? Also, does he have alopecia or other hair ailment? Wishing you all my best. | He doesn't show any signs of hair ailment but we did catch this at an early age. And at his age, it really doesn't mean a whole lot to him right now. We did explain everything to him and the fact he won't be able to produce kids. But right now at 14 it isn't a big deal. I am sure when he is older is when it will have a bigger impact. But thanks for the wishes.
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07-25-2006, 01:19 PM
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Originally Posted by want8 He doesn't show any signs of hair ailment but we did catch this at an early age. And at his age, it really doesn't mean a whole lot to him right now. We did explain everything to him and the fact he won't be able to produce kids. But right now at 14 it isn't a big deal. I am sure when he is older is when it will have a bigger impact. But thanks for the wishes. |
Man want8, this is awful! He can't have children of his own???? Damn it that sucks! Poor kid. I know he may not think of it as a big deal now but when he meets that special woman and he can't produce, it's likely to become a big deal. Keep an eye on him, this could have some psychological impact on him later on. All the best to him!!
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07-25-2006, 04:14 PM
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#23 (permalink)
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| My uncle is sterile. He and his wife adopted two girls and he leads a very happy life.
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07-25-2006, 11:27 PM
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| All the best wishes for your son 8.................... Many doctors told my wife that she would never be able to have kids. She has had many female problems. Endrometreosis(sp?), tipped uterious, cists on her overies, the list goes on and on. We have 2 sons, we lost one when she was 5 months along. All I'm saying is doctors can be wrong.
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07-27-2006, 01:04 PM
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#25 (permalink)
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| Thanks guys. And we are optomistic. The doctor said he would not be able to produce, but he also said nothing is impossible. So, there is a slim, very slim, chance he may be able to produce. But as Uber said, adoption is always there. Also artificial insemenation. So as bad as it may seem, it is not the end of the world. We are just thankful this is all that is wrong. By the way Loki, damn nice gains my man!
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07-27-2006, 10:31 PM
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| Thanks 8................... Thinking about taking a break from pe for a bit. Gains are comming harder so maybe I need to chill for a week or 2, but talking about taking a break and doing it are worlds apart.
Your kickin'ass in your gains too Bud !
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09-28-2006, 02:00 PM
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#27 (permalink)
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| Well, we have been giving Test injections as recomended by the Doctor for about 4-5 months. It seems like the Testosterone is having an effect on his attitude. I know it can make you have mood swings. And at 15 years old, I simply believe he doesn't know how to control his moods as an adult can. I have talked to him about his attitude but it doesn't seem to help. Lately he has really pissed me off a couple of times and I just know the day is coming when I am going to snap and beat his ass! I try to stay away from whipping my children, but sometimes it is the only way to get it in to there thick heads that you will do what you are told. Anyway, just throwing this out there hoping someone will throw a magic suggestion at me.
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09-28-2006, 02:57 PM
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Originally Posted by want8 Well, we have been giving Test injections as recomended by the Doctor for about 4-5 months. It seems like the Testosterone is having an effect on his attitude. I know it can make you have mood swings. And at 15 years old, I simply believe he doesn't know how to control his moods as an adult can. I have talked to him about his attitude but it doesn't seem to help. Lately he has really pissed me off a couple of times and I just know the day is coming when I am going to snap and beat his ass! I try to stay away from whipping my children, but sometimes it is the only way to get it in to there thick heads that you will do what you are told. Anyway, just throwing this out there hoping someone will throw a magic suggestion at me. | There's a saying my grandfather told my father once.
"Beat your child everyday. If you don't know why, he does." 
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09-29-2006, 02:17 PM
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| That was good Ube! And don't get me wrong, I have beat there ass on many occasions. But now, I feel like we have brought our kids up in a great atmosphere and we involve them in most of what we do. And they know what they should and shouldn't do. So I guess I am just expecting that they do the right thing without me beating there ass. My 18 year old, no problem. My 15 year old, I think it is time for another reality check.
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09-29-2006, 10:57 PM
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| Well, this has certainly been an interesting post to read, I'm sorry I didn't see it earlier. I was diagnosed with klinefeltors syndrom when I was about 12 years old. I don't remember my exact height at the time, but to give an example...I was taller then my teacher in 3rd grade and I started going through puberty when I was in or before 1st grade. My doctor prediagnosed me after seeing that my testicles were smaller then normal.
The first thing I will say, is don't believe everything you read about this syndrom. A lot of sites/books/etc have a lot of bs answers about what is going on with your son. I know because when my parents first found out what I had, the only information they could find at the time was that I was going to end up in jail or something. This is total bs.
I do have learning problems, which is one of the symptoms of xxy, but I got mostly B's in hs despite and depending on my social life in college as well. I have absolutely no problems with the ladies, despite having a small dick...but thats why I'm here right? There are lots of other people out there with the same thing, its surprising actually.
I started out taking the shots when I was younger and I will admit it will cause mood swings. If its possible for your son to learn how to give himself shots, that might be the best solution down the road. I'm currently using the gel for testosterone. Its not that hard and it does work. However, it causes complications when you're with a girl--don't want to get any on her afterall. I've never tried a patch before, but if your son is at all active, I wouldn't recommend them, as they tend to fall off. Also, I've heard they are not like this anymore, but the patches I've seen all say "Testosterone" in large letters on the back of them.
As far as the kids go...I know that it is impossible to have kids while taking the testosterone. However, there is a slight chance that if your son were to come off of the testosterone that he could be fertile. There have been cases where a klinefeltor has been fertile. (My mom dragged me to a few support groups when I was a kid) So there is that possibility. If that doesn't work, I've been told there are a few procedures out today that will help in that area. However, I'm sure they're pretty expensive. I don't know too much about this, because honestly I'm not trying to get any girls pregnant right now.
I've learned a lot about it over the years, so if you have anymore questions, I may be able to help, using first hand experience. My rents have a bunch of info too, as well as a few support groups that have a wealth of information about all sorts of things. So I'll try to get you connected somehow.
PS
I am currently 20 years old and a sophmore in college. I played three varsity sports in highschool and I wasn't bad. I was never that kid that was left out, as some of the info may say. I'm passing all of my classes right now and I also have a girlfriend. I also have to shave everyday, otherwise I'd have a beard (I'm the only klinefeltor I know that has to worry about shaving) So...don't worry your son should be fine.
Last edited by XXYGuy; 09-29-2006 at 11:53 PM.
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10-02-2006, 03:26 PM
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#31 (permalink)
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| This is very good to hear. Actually, he is doing well in school. He is having to start shaving. And as far as the size of his dick, the doctor said he os normal if not larger than normal. It is just his testicals that are small and somewhat hard. But I do know the Test is causing him to have mood swings. And I am interested in hearing more. Thanks
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10-02-2006, 03:54 PM
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| want8, I just read this whole thread and just wanted to say, im sorry for what you and your family have to deal with. Does your son have any hobbies? Having a good hobbie might make his moods easier to control. I know when I was younger, I would try and draw something, but I always had a natural ability to draw. Something like this is a good stress releiver. I might even suggest taking him to the gym to help with the mood swings.
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10-03-2006, 02:28 PM
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#33 (permalink)
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| Yeah, he has a couple of hobbies. He is big in collectibles such as cards(racing,baseball,football) and he is a nascar freak! I can't even tell you how many Autographed Die Cast cars he has from Dale,Jr. He does a lot of trading on E-bay. He also has a job after school at the Country Club we are members of. We live on the golf course so it is very convenient. He really is doing well in all aspects, he has just gotten a little bit of an attitude lately which I think I can straighten out. He is a very quiet person, you have to really talk to him for a while before he will say a word. But anyway, thanks for all the comments and suggestions.
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10-03-2006, 03:14 PM
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#34 (permalink)
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| The attitude should get better after a while, once he gets more used to the testosterone. However, that being said, I still tend to get pissed off pretty easily every now and then--but I generally keep most of my anger in. As far as being quiet, I used to be real quiet back in the day too. I don't really know if its a klinefelter thing or not, but I don't have any trouble keeping a conversation going now. That may or may not be more of a confidence issue.
I usually think of klinefeltors as more of a challenge or set of challenges, then anything else. Theres always going to be some doctor or someone thats going to tell you what you will and will not be able to do, because of the syndrome. I usually take that, and try to prove them wrong. If you are able to accomplish that, thats one hell of a confidence boost.
I'm not saying theres anything wrong with your son, but sometimes just knowing your different from everyone else, can have a negative affect on your confidence, whether you know it or not. Klinefeltors should not necessarily be looked upon as a hindrance, but instead something to use a fuel--something to push your son to do better then what the medical world might expect.
Don't get me wrong, I'm not a perfectionist in the least bit, but proving someone wrong...especially a doctor...is one hell of a confidence boost.
As for the hobbies, it sounds like your son is doing great. One of the key things is to keep your son active and enjoying things, and it sounds like he's accomplishing that. Plus, the more he experiences and enjoys, the more he will have to talk about. Once he finally opens up.
PS
Sorry if I stretched that out a bit too much. Hopefully you got the idea. I'm running on very little sleep right now. Later |
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10-03-2006, 05:55 PM
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#35 (permalink)
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| XXXYGuy, that was a very well written and heartfelt post and should be a big comfort to my buddy Want8.
Hey Want8, at 15, all teenagers go through an attude. Don't hit him. He has enough on his plate without the person he loves being mean to him, (in his eyes). Give him all the love and understanding you can during this very difficult period of his life and it will pass. He sounds like a great kid and I offer congratulations to you and Mrs. Want8 for the fine job you are doing, coping with this. Best of luck buddy.
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